Jacob & Lili

Jacob & Lili

Friday, June 15, 2012

Great Expectations

Jacob had yet another scope. This one to see if chicken and turkey are a pass. We also had his button changed as well. The biopsies came back showing 0 eosinophils in his esophagus. Meaning, chicken and turkey are a pass and that the Nexium is keeping his acid reflux under control. Jacob decided to trial eggs next. Things seemed to be going well for about 3 weeks on the egg trial, or so we thought. Two weeks in we started to notice that he was chewing up his food, storing it in his cheeks and then spitting it out. What we didn't piece together was his behavior becoming more and more volatile day to day.

We didn't put things together until our trip to Oregon. Every year, since high school, I have made a pilgrimage to Ashland, Oregon for the Shakespeare Festival. For years, this trip has been the highlight of my summer. The past 2 years we haven't made the trip due to finances and Jacob's health and so we decided to restart the tradition this summer.

I have always loved Ashland. We always spent time walking around the small town, meandering in and out of the cute little shops, eating, and of course seeing the incredible plays. This trip was different. Having 2 kids with food allergies and having to accommodate those needs put extra stress on the occasion. And then there was Jacob to contend with. Not realizing that he was failing eggs, his behavior was beastly. It took more patience than I had in my reserves to keep from typing him to the nearest tree and slapping duct tape across his mouth. Although I enjoyed the few moments of peace I was given, overall my Ashland experience was not what it used to be. And so I wonder if I will go back again.

The night before we headed home, I realized that Jacob was failing eggs. That his esophagus was inf lammed so he wasn't able to swallow. That he was in pain and so his beastly behavior was his way of telling us this. We stopped eggs and within a few days he was back again.

Then we came home to family drama that for once didn't involve my kids. But it has spilled over into our already chaotic lives. Our trip to Italy has been cancelled. Although I was looking forward to voyaging to Europe, I can't help but feel some relief. I was dreading having to pack up all of Jacob's medical supplies and then trying to feed him while abroad.

Jacob has decided to now trial apples. Mostly so he can drink something other than water. Time for more creative cooking!

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The Maupin's

The Maupin's