Jacob & Lili

Jacob & Lili

Wednesday, March 14, 2012

Long Lost Update



Oh goodness! It's been a very long time since I was on here with an update. Jacob successfully passed his banana trial. We also snuck in maple syrup and soy free earth balance! Unfortunately, he failed potatoes and dahl (an indian lentil soup) right after. I cried after the dahl fail. I had hoped that he would pass and then maybe the g tube would be a thing of the past. It was heart breaking. So today he started beef today in the form of a 100% all natural beef hot dog. I'm hoping this passes for his sake. He loves his hot dogs.

Over this past weekend our family had the privilege of attending a special event. Jacob was invited by Wells Fargo Bank to Disneyland! As part of a community building exercise, executives of Wells Fargo were educated on EoS diseases and how it affects
our kids. Then they were challenged to make a "cake" of toys for the kids. And then Mickey came out. The kids showed Mickey their Mic-Key's, so cute. Hopefully we didn't scar the poor person behind the mask. The kids received free passes to Disneyland and we spent 2 days at the happiest place on earth. It was so awesome to see more awareness being spread about this horrific disease.

Jacob's next scope is up in the air. While writing this blog post I took a break to pick up the kids. Jacob told me that he was having pain with the hot dogs, another fail. He's so frustrated. He says he doesn't want to trial any more foods ever. Can't say that I blame him. So we will take a break. Maybe apples next.

The Maupin's

The Maupin's