Jacob - confirmed for mitochondrial dysfunction. Similar to mitochondrial disease but not as severe. It is managed the same way the disease is, the Mito cocktail.
She suspects that he may either have candida or bacterial overgrowth in his gut. I had put off the stool labs because of the expense but will now have to do it.
Lili - She tested positive for a non-celiac gluten intolerance. Simply put, levels are high but not high enough to diagnose celiac, therefore a gluten intolerance. Her IgG testing confirmed this as well. She also has a dairy intolerance.
Her Vitamin D levels are lower than Jacob's which is concerning. For Jacob's to be low is "normal" considering he has an auto immune disease. So we are rerunning the celiac labs, this time the labs are being sent to a more specialized lab.
The doctor suspects that it is very possible that Lili may have a parasite or candida. So again the stool labs that I had put off will be done this week.
I left the doctor's office with more lab slips and more supplements then a drug store. The kids are now on the following supplements which are all hypoallergenic.
Jacob: Pro biotic
L-glut amine powder
L-arginine (if he reaches he CoQ10 dosage)
Lili: Pro biotic
Gluten - Free Diet
I think I've got a handle on making sure they are taking their supplements. I feel like a drug dealer two times a day. The B12 shots are being shipped out so that will start sometime this week. That is going to be a challenge.
I told Lili that when we got back from San Diego for Jacob's 6th scope, then we would start the gluten free diet. Well, today is the day. I took her with me to Whole Foods. She is not taking this very well. Everything I suggested she said no. I wanted to stop and yell at her. Tell her be grateful you don't have to have a feeding tube like your brother, but I managed to keep it together. We finally found some things that I think she will like. It was exhausting. Just like with Jacob, I have to read every single label. When we left I had food for Lili and Jacob, but had completely forgotten about myself and Gary.
On the upside, Jacob's scope went well. His doctor said his esophagus and stomach look really good. The biopsies will tell us truly if corn is a pass. I broke the rules this time around. I've let Jacob start his next food trial without having the results of the biopsies. He so much wanted to try ham and bacon while we were in San Diego, I couldn't say no. I did tell him that if the biopsies show that corn is a fail that he'll have to stop the pork for a few weeks. He was willing to take the chance. So in the past few days, he has eaten more swine then I think he's ever eaten in his life. Here's hoping corn is a pass!