Jacob & Lili

Jacob & Lili

Tuesday, November 15, 2011

Scope #5 - Pass or Fail?


After 6 weeks of eating rice, brown rice pasta, rice crackers, and rice cakes we took Jacob back to San Diego for another scope. During this scope they replaced his G-peg tube with what is called a Mic-Key button. Now he no longer has a tube hanging out of him. When he's on a feed we plug into the button but otherwise he is free to run around without worrying about catching the tube. One step closer to living a fairly "normal" life.

Putting Jacob under general anesthesia and leaving him the hands of the anesthesiologist in the OR never seems to get easier for any of us. This time around they didn't give Jacob the "silly juice" before taking him back. I walked Jacob to the OR and watched as they used their potions to put him under. I used to be volunteer in the OR when I was in high school and have seen a lot. I have this uncanny ability to disconnect myself from these situations so I can get what needs to get done, done in spite of of the pleas from Jacob that he's not ready. He's never ready. But that disconnect only lasts for so long.

The biopsy results came in on Monday showing no inflammation and 0 eosinophils. Rice is officially a pass. Jacob has decided that corn is next. So back to the store I went for canned corn, corn chips, and popcorn. Another 6 weeks and then we will see...

Sunday, November 6, 2011

Family Vacation?


This is a topic I've been meaning to write about for awhile. I would like to state for the record, family vacations are NOT vacations. I would say they are more like family experiences. When I think vacation I think of relaxing, sleeping, enjoying my surroundings uninterrupted. We love taking our kids to different places and exposing them to new experiences. However...being with you children 24 hours a day for however many days in close quarters does not make for relaxation.

First there's the pre trip mania of packing. Not only do I need to make sure I have all our needed clothing and toiletries but I have to make sure we have enough feeding bags, formula, syringes, medications, gauze, etc...

Then we get there. The kids are so excited and want to get going before I haven't even had a chance to catch my breathe. And then the fighting starts. Sibling fighting never takes a vacation. There's constant negotiations in order to keep the peace and my sanity. On this last trip I told Gary that I was going to take walk down the beach to clear my head. You know what happened? They followed me!

We love watching them play and be kids. Those moments are priceless. In between the fighting, the pulling in every directions, feedings, and whining there is family fun to be had. This is a family experience.

Now my vacation, that is time alone with my husband enjoying the quiet and taking a breathe.

The Maupin's

The Maupin's