Jacob & Lili

Jacob & Lili

Tuesday, September 13, 2011

Jacob's Walk for CURED



Our walk was a huge success. It was a lot of work and I think I gained a few more grey hairs in the process but it was worth it. In our small way we have helped in the search for a cure for not only Jacob and Lili but for all kids who are suffering with EOS. As Jacob gets older he can say he had a part in this.

A huge thank you to my cousin Trish who got up at 5:30 am and helped me at the park. Thank you to Wende and Mindy for their friendship and support. Thank you to Melissa for her amazing photos. And to Tammy for her words. Diana, for loving my kids and support. Penny for the same. Marietta, for your friendship and those amazing cookies. Finally, my parents, who have been supporting us through this whole ordeal. Love to you all. We will overcome this.

Jacob has his next scope next week and we are hoping for good results. Stay tuned... Jacob's 2nd Annual Walk for CURED is on the horizon.

Saturday, September 3, 2011

35!...Make it stop!!!


Tomorrow I turn 35! How in the world did this happen? Remember being 15 and thinking that 30 was so old. That are parents were moronic at best. And that we knew it all. And now here I am.

Sure I have regrets. My path hasn't gone the way I had dreamed at 15. But then my life so far is for the most part not too shabby. I have a great husband. We celebrate our 12 year wedding anniversary on Monday. I have 2 great kids. Granted they both have issues but they are both strong and amaze every day. We have a home, jobs, and food on the table. We are able to to take a break every so often, thank you mom and dad. It's so easy to dwell on what we haven't accomplished and it can bog us down in our own self pity. The struggle is to remain positive. To encourage ourselves to keep going, especially when your child suffers every day.

Both kids are doing amazingly well in school. Lili has been cast as the lead in her class play, no small accomplishment since their drama teacher is a nazi of sorts when it comes to the theater. Jacob is taking his NG and feedings in stride and isn't letting it get best the of him. How many of us could do the same?

So turning 35, wretched as it may be, isn't so bad? Well, we'll see how I feel come tomorrow morning when its official.

The Maupin's

The Maupin's