The appointment was scheduled for 4:30. So after a long day at school, we drove up to Los Gatos and met with the pediatrician. She walked in with a huge file, Jacob's file. The first words out of her mouth were, "So looks like you all were busy in Cincinnati and now you need some medication for Jacob". I was stunned. The huge file was every report that Cincinnati generated for both Jacob and Lili and in it the recommendations for the pain medications. I went over my week of frustration with her after which she said she would gladly give us the scrip for Amitriptyline. Amitriptyline is an anti-depressant but it is also used for functional abdominal pain. She asked if we were working with a psychologist and asked if we had a psychiatrist for Jacob as well. For a while, Jacob was seeking a psychiatrist for his anxiety and was on a drug called Strattera. We hadn't been back to see him, however, since Jacob stopped taking the medication because of the pain it caused to his throat when he swallowed it. She said she would contact the psychiatrist to make sure the dosing and titrations are correct and would work with him to make sure Jacob received the full benefit of the medication. Meanwhile, Jacob was busy under a table showing the doctor his true colors complete with accusations of "you hate me" and "no one loves me". Dr. K looked at me and said, this may help with some of the other things as well. Oh, please I hope so. Finally, she suggested sending all the pain management reports to the psychiatrist as well. She said he may be able to help us faster and more effectively than Stanford. I tend to agree.
Lesson to be learned from this - Sometimes the help you need is in a quiet corner where there are no grand accolades or high praise and not in the big names with the big reputations.
Today was Jacob's field trip to Happy Hollow. I was a little worried about the food situation but managed to come up with some things he could eat that didn't require me cooking or heating up. He didn't eat much though.He played hard and at the end of the day it took a toll. He's exhausted and I have a feeling he'll be in my bed shortly with more than a few complaints. But for a few hours today he was a normal kid, doing normal things.