I went to Stanford and got him an appointment with a nurse practitioner. We already had an appointment with a doctor for the following week but I couldn't wait that long. To my surprise the nurse practitioner was very helpful. She sat with us for 2 hours. Went over everything. Listened to what I had to say. In the end she said, let's do an xray. I had suggested this to the former doctor who told me that since his labs were all negative she wouldn't learn anything new by doing an xray. Well, the xray showed that his large intestine was completely backed up with stool. Major constipation. All in his head?
We did a colon cleanse for 2 days, that was fun. It eased his pain a little but not completely. I took him in to see his new doctor at this point. He told me that the steroid that he is on can cause pancreatitis. He also listed 5 other things it could be including IBS. So he ordered an ultrasound. Told me to give Jacob a pro biotic and miralax everyday, and stop the steroid. If the pain persists then we do another xray. (Since we've stopped the steroid we hope the EoE remains in remission.) And so that's what we did. Jacob didn't "go" for 4 days. Finally today, a miracle, he pooped. Never would I have thought that the contents of a toilet would make me so happy. Again his pain has eased but hasn't gone away completely. He's finally back in school and our lives are somewhat normal again. The next few weeks will hopefully tell us more.