Jacob & Lili

Jacob & Lili

Monday, February 14, 2011

More Tests, Good News and More Questions

Crazy this life of mine has turned out to be. Jacob's lower belly pain seems to be getting worse. He was sick with strep (thank you fellow 1st graders) and while he had the fever his pain intensified. At one point we didn't know if we should take him to the ER or the doctor. Scary. A few days before getting sick, he had gone in for his 2nd endoscopy. The results showed that his eosinophil count was 0! Good news. But there was still no explanation to the belly pain. We took him back to the doctor, who then said that due to his anxiety maybe this is all psychosomatic. Really? I've got a kid with a fever who is screaming in pain and this is all in his head! And then she wanted to prescribe him an antidepressant. I was done.

I went to Stanford and got him an appointment with a nurse practitioner. We already had an appointment with a doctor for the following week but I couldn't wait that long. To my surprise the nurse practitioner was very helpful. She sat with us for 2 hours. Went over everything. Listened to what I had to say. In the end she said, let's do an xray. I had suggested this to the former doctor who told me that since his labs were all negative she wouldn't learn anything new by doing an xray. Well, the xray showed that his large intestine was completely backed up with stool. Major constipation. All in his head?

We did a colon cleanse for 2 days, that was fun. It eased his pain a little but not completely. I took him in to see his new doctor at this point. He told me that the steroid that he is on can cause pancreatitis. He also listed 5 other things it could be including IBS. So he ordered an ultrasound. Told me to give Jacob a pro biotic and miralax everyday, and stop the steroid. If the pain persists then we do another xray. (Since we've stopped the steroid we hope the EoE remains in remission.) And so that's what we did. Jacob didn't "go" for 4 days. Finally today, a miracle, he pooped. Never would I have thought that the contents of a toilet would make me so happy. Again his pain has eased but hasn't gone away completely. He's finally back in school and our lives are somewhat normal again. The next few weeks will hopefully tell us more.

The Maupin's

The Maupin's